Our library:
We have in our library the following (mostly in Dutch) publications:
- 'Het Moebius Syndroom' by Yolanda Meijer.
Written by a Moebius patient, especially for younger people.
- 'Een verborgen lach....'
Informatie aan fysiotherapeuten en logopedisten voor hun behandeling van een kind met het
Moebius Syndroom.
by Jurriaan Rombouts and Joyce Vach, Hogeschool van Utrecht. January 2000.
A bi-disciplinary approach to the treatment of Moebius patients.
- 'Het Moebius Syndroom'. By Ester Plat.
- 'Gevolgen van en fysiotherapeutische interventies bij het Moebius/Poland Syndroom' by
A.R.J. Vlierman.
- 'Facial Reanimation in the Moebius Patient'. University of Nijmegen.
- 'My child looks different'. A guide for parents.
- A video tape with a collection of all TV broadcasts in the Netherlands regarding the Moebius Syndrome.
And the following:
- of all the articles mentioned in 'Media' you can order
copies. Send your order to the 'Nederlandse Moebius Syndroom Stichting'
- we are in possesion of a videotape of the smile operation as it is carried out by dr.
Zuker from Canada. The whole operation takes about 11 hours, the most important parts of
the operation, and the preparation of this operation for the Patient, is on video.
The video is in english and can be ordered from our Foundation.