Moebius Syndroom Stichting Nederland

The Dutch Foundation:

In october 1997 the Dutch Moebius Syndrome Foundation was started.

Information:

From our regulations:

"The Foundation has committed itself to gather and spread information regarding the Moebius Syndrome, to promote the research on the appearances and causes of the Syndrome, to help the patients and their families, to promote the recognition and acknowledgement of the Syndrome. Furthermore; al there is in direct or indirect connection with this Syndrome."

The Foundation tries to reach her goals bij:

organizing lectures, symposia, workshops and such
spreading articles in national and international papers,
organizing meetings for patients and their families.

Adress information:

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Moebius Syndroom Stichting :		Moebius Syndroom Newsletter :
Gravenstraat 30		Tedingh van Berkhoutplantsoen 13
5663 GC Geldrop		1141 HK Monnickendam
tel 040 - 2800559		tel 0299-653774
K.v.K. Amsterdam 41217519
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Patient contacts :		Internet homepage :
Haaswijklaan 25		http://moebiussyndroom.nl
2343 PA Oegstgeest		e-mail adress (remove the words: geen spam)
tel 071-5170432		Info geen spam@moebiussyndroom.nl
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Gifts are welcome on our bank account:
postbank rekeningnr 7711053
on the name of: Moebius Syndroom Stichting Amsterdam

These pages are made by: Ben van Zanten (Info geen spam@moebiussyndroom.nl).